Amelia and I returned home from our trip to NY early. It was unanimously decided that her breath-holding spells were too difficult to control while in treatment. She had two spells the first week and another episode the second Monday. We tried to medicate her with more pain medicine, and then added valium, but nothing seemed to keep it from happening. The spells came with no warning and were getting harder to reverse. What I’m saying is that she was not breathing for a long time. That can’t be good for anyone.

So it looks like our 3f8 antibody treatment has now ended. The doctors believe that 5 ½ cycles of treatment is adequate. The risks of continuing treatment started to out weigh the benefits of more cycles.

I must admit that not having to endure another 3f8 minute is rather uplifting. Each cycle was unimaginable. I understood the need for the treatment but the treatment itself was insane.

The kids and I are leaving for a week-long vacation on Thursday. I am still coming down from our antibody experience and am looking forward to some R&R. If only the kids would let up a little… They are making me crazy.