** Ultrasound was clear.

Good news about the scans. No evidence of disease and we get six months off. There is a little something on her spleen that they saw on the CT that they want to ultrasound but I’ve been told not to worry. Right? Ultrasound is being scheduled now.

Amelia was a trooper preparing for her scans. Unfortunately the MIBG guys didn’t run things as smoothly as usual and that created some added stress. In, out, start, stop, lie still, ugh! It’s a lot for anybody. They didn’t like that she pulled herself up the table a few inches but they didn’t see any reason to start over. I don’t like it when they don’t have their act together. The mibg scan takes at least an hour and a half to complete and she’s not sedated. It makes it hard for me to prepare her for future scans. Within the first five minutes of fooling around she looked at me with a long face and said, “I want to get out of here.” By the time the scan ended she was fast asleep.

Our first shipment of growth hormone arrived today. We will have a nurse come out to teach us what to do in the next couple of days and then we begin. I am excited for her and scared at the same time. The doctors say this drug will not cause neuroblastoma cells to grow, but it does cause all other cells to grow. Ugh! I know she really wants to be bigger and blend in better. She doesn’t like the “she’s so little for a four year old” attention or the comments about her funky hair. Let’s hope it’s all smooth sailing.