Amelia is doing well and enjoying school. She seems to be feeling some side effects from the growth hormone therapy lately in spite of her lack of growth. She’s been having some aches and pains here and there coming and going. Her legs, her back, her head. Nothing that is persistent or disabling but notable. Rather frightening for me since anything can look like a relapse. We were given a six month break from scans back in July and I thought I would like that, but at this point I’m not so sure. I am trying to keep all of my worries in God’s hands but I have found this to be a trying time for me. My hope is to see some growth by Christmas. Keep her in your prayers.


We spent a lovely afternoon in the pumpkin patch with a NB family that lives a little south of Annapolis. Erin Keenan (5) and her Mom and brother and sister. It was nice to finally meet them and swap stories on a sunny afternoon. It’s always nice to talk to someone who really knows where I’ve been, and Melinda does. They are still making regular trips up to Sloan-Kettering for antibodies. Anyone who has done that before knows that it’s not really something you look forward to; you just do it. Hopefully we will be able to keep in touch and get the kids together again soon.

We drove out to Banner Elk, NC a couple of weeks ago for my cousin Ted’s wedding. It was a lot cooler than I had expected and rather wet. One afternoon we drove up to Grandfather Mountain for a little fun. The kids loved climbing all of the giant rocks and the trees. We only wished we had planned a little extra time for recreation. The wedding was lovely and we are thrilled to have Jen in our family.

Next month we will meet with the endocrinologist for a follow-up. Until then.... thanks for checking up on us.